27 Mar 2012
by PANDAS - PITAND ~ Mom to My Hero
in ~♥~ Faith's updates ~♥~
Tags: Antibody, Arts, Bacterial, Baking and Confections, basal ganglia, Buttercream, Cake, cake lasagna, child, Chocolate pound cake, Christianity, coconut macaroons, Conditions and Diseases, Cooking, Corned beef, Corned Beef and Cabbage, Corned Beef Brisket, corned beef brisket cabbage, corned beef brisket crock pot, cross cake, dessert lasagna, Duck à l'orange, Easter, Easter cake, Easter Cross Cake, Fondant, fondant lasagna, fondant trombone, Food, food art, food fun, GABHS, GAS, gluten, gluten free, Gluten free cake, gluten free chocolate cake, gluten free chocolate pound cake, gluten free trombone cake, Gluten-free diet, God, Group A beta hemolytic streptococcus, Group A Strep, Home, infection, Infectious Diseases, Instrument Cake, Intravenous immunoglobulin, iPod cake, Jesus, Lasagna cake, lasagna dessert, Lord, Lyme disease, macaroons, Marshmallow fondant, Mental Health, MM fondant, Music Cake, Musical Cake, OCD, Okra, orange cream crescent, Orange Duck, PANDAS, PANDAS & PITAND Awareness Ribbon, parmesan shrimp, Pediatric, PITAND, play with food, play with your food, Religion and Spirituality, roast duck, roasted duck, scallops, scallops spinach, Seafood, Shrimp, shrimp scallops spinach, Sore throat, St Patrick's Day, St. Patrick's Day traditional, St. Patrick's Day traditional dinner, steelhead trout, steelhead trout apple, strawberry cake, strep, strep throat, Streptococcal, streptococcal infections, Streptococcal pharyngitis, streptococcus, Throat, Trombone, Trombone cake, walnut orange cream cheese, walnut orange crescent, wedding cake
07 Apr 2011
by PANDAS - PITAND ~ Mom to My Hero
in ~♥~ Faith's updates ~♥~
Tags: Antibody, Conditions and Diseases, GABHS, GAS, God, Group A beta hemolytic streptococcus, Group A Strep, Health, Infusion, Intravenous immunoglobulin, IVIG, PANDAS, Pharmaceutical drug, PITAND, Sore throat, strep throat, streptococcal infections, Streptococcal pharyngitis, streptococcus, Throat, United States
We have received approval from our secondary insurance provider (approval from the first was received yesterday) for Faith’s IVIG infusions.
As most of you are aware, she has been having an increasingly difficult time since soon after the 3 week point post her last infusion.
The specialty pharmacy will be overnighting the medication & supplies to our home. This formulation is a little different than the one she was receiving recently. This will be the same one as what she received locally previously and she seemed to do better on this medication so we are hopeful we will see that continue.
The first half of this infusion will be on Friday and the second half will be administered on Monday.
Her doctor is monitoring her progress and her labs and will determine where we go from here… if any adjustments are needed and how long she will require treatment.
Our next step is to eradicate these strep throat infections… we’re working on that…
Thank you all for your prayers… God remains in control and is providing for her needs. ♥
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21 Feb 2011
by PANDAS - PITAND ~ Mom to My Hero
in PANDAS & PITAND ~ my blog
Tags: Bacterial, Conditions and Diseases, Health, Infectious Diseases, Sore throat, Streptococcal pharyngitis, Symptom, Throat
I have strep throat again myself (4th time in five months for me – many, many more times for Faith).
We will be traveling to her CT immunologist again this week for another IVIG infusion for her, which will be done over a two day period. The infusion center is very nice and quite comfortable for the children. The nurses are absolutely wonderful with them; we are so thankful!! Faith must be well hydrated before, during and after these infusions, to minimize side effects of the IVIG… that part can be quite challenging when she has a sore throat… which she often does due to the strep throat and she does right now.
I’m going to be collaborating with other health care providers (I’m an RN, for those of you who do not know) on a project in which we will gather a ‘snapshot’ view of PANDAS patients to better educate our peers and help improve care for our children with PANDAS. I’m looking forward to making more headway in that area.
I am also researching dietary support for her immune system and will be making more changes to her diet… likely wheat gluten and casein free… this one will involve more work than what I’ve already done for her (eliminating dyes, caffeine, sugars and reducing carbs while increasing protein… and no pre-prepared or processed foods), but I hope will be well worth it as I know a lot of PANDAS moms have found very good success in reducing symptoms.
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