Food Fun!

Food Fun!

Please feel free to share these food pics, as long as you credit and link back to my blog page where you found the food pic.

Thanks & enjoy!

😀

Hollow bell of Trombone cake
with removable large and small mouthpieces at far, right end
Hollow bell of trombone cake
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Trombone cake 2012
Front view of husband's 2012 birthday cake
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Strawberry Cake
Hope & Faith - celebrating birthdays together
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Easter Cross Cake 2011
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Creamy Parmesan Shrimp and Okra
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Orange Cream pastry, sliced open
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Chocolate “Lasagna” Cake
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Wedding Reception cake
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Easter Cross Cake 2010
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Side view of iPod Birthday cake 2010
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Steelhead Trout
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Corned Beef Brisket, Cabbage & Carrots
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Glazed Roasted Duck a l’Orange
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Coconut Macaroons
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Lemon Ginger Shrimp & Scallops over Wilted Spinach
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One Step Closer, I pray…

We have received approval from our secondary insurance provider (approval from the first was received yesterday) for Faith’s IVIG infusions.

As most of you are aware, she has been having an increasingly difficult time since soon after the 3 week point post her last infusion.

The specialty pharmacy will be overnighting the medication & supplies to our home.  This formulation is a little different than the one she was receiving recently.  This will be the same one as what she received locally previously and she seemed to do better on this medication so we are hopeful we will see that continue.

The first half of this infusion will be on Friday and the second half will be administered on Monday.

Her doctor is monitoring her progress and her labs and will determine where we go from here… if any adjustments are needed and how long she will require treatment.

Our next step is to eradicate these strep throat infections… we’re working on that…

Thank you all for your prayers… God remains in control and is providing for her needs.  ♥

Strep throat and another trip for IVIG infusions

I am sick with strep throat.  Faith is not feeling well either and thinks she has it too… entirely possible.  We leave first thing in the morning to fly to the infusion center for her next 2 day IVIG infusion… please pray for us; the last few days have been difficult and I’m concerned about how this trip will go for us; we are entirely in God’s hands.  Thank you!

Strep… a new project and dietary changes

I have strep throat again myself (4th time in five months for me – many, many more times for Faith).

We will be traveling to her CT immunologist again this week for another IVIG infusion for her, which will be done over a two day period. The infusion center is very nice and quite comfortable for the children. The nurses are absolutely wonderful with them; we are so thankful!! Faith must be well hydrated before, during and after these infusions, to minimize side effects of the IVIG… that part can be quite challenging when she has a sore throat… which she often does due to the strep throat and she does right now.

I’m going to be collaborating with other health care providers (I’m an RN, for those of you who do not know) on a project in which we will gather a ‘snapshot’ view of PANDAS patients to better educate our peers and help improve care for our children with PANDAS. I’m looking forward to making more headway in that area.

I am also researching dietary support for her immune system and will be making more changes to her diet… likely wheat gluten and casein free… this one will involve more work than what I’ve already done for her (eliminating dyes, caffeine, sugars and reducing carbs while increasing protein… and no pre-prepared or processed foods), but I hope will be well worth it as I know a lot of PANDAS moms have found very good success in reducing symptoms.

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