Second trip to doctor for IVIG

We arrived safely yesterday. Both flights were delayed; we were actually fortunate that the second flight was delayed because we may have missed it due to the delay of the first flight. Faith was able to sleep a little while on the first flight, which was good because she still needs a lot of sleep so her body and brain can heal.
We were ready for lunch when we arrived. Faith had never been Times Square, so we went there for lunch and ate at Bubba Gump’s – amazingly great service! She was excited to see ‘everything’ … especially the electronic ads and the ferris wheel in Toys R Us… until she realized there was not enough time for her to ride it. 😦 Otherwise, it was a fun, quick hour for her.

Times Square

Unfortunately, the pool was closed, so she was unable to swim as she’d hoped. Instead, we met another PANDAS mom and her daughter (a few years younger than Faith) so the girls could bowl.
We were up early this morning to have breakfast and get ready for her appointment first thing this morning.
The first half of her infusion went pretty well today. She slept for about an hour. She had only a slight increase in her headache today. We were better prepared in reference to hydrating her well and the wonderful nurses at the infusion center ran her IVIG slower to decrease risk of headache & nausea and also are utilizing medication to help manage symptoms… so far, that is working great. She is not having any increased nausea at this point… just the typical headache, sore throat and nausea that she usually has with strep throat.
Oh… and Vigi (her IGIV blue bear) got a new outfit today, complete with a flower for her hair and matching boots! I made it from the sticky wrap they used to secure Faith’s IV line. 😉


We are both so tired… Mommy might be even more tired than Faith… might have to nap today in order to get through tomorrow.
We appreciate your continued prayers.

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