Children with PANDAS or PITAND

First day of middle school/6th grade ~ September 2010

On a recent evening as I tucked my daughter in to sleep for the night, she asked me for a belated Christmas gift. Thinking she wanted a toy or book or trip to her favorite clothing store (Justice), I asked what it was. She reached her little hand up, gently stroked my face and said, “Mommy, please go to sleep early and get some rest tonight; you are so exhausted.” Oh honey… but for you… ok, tonight, I will. ♥♥♥  THAT… is the precious child this horrific disease is trying to take from me… She may have PANDAS, but it will not have her!

Website/Forum for Children with PANDAS/PITAND: Guide to PANDAS Syndrome

Only from a P.A.N.D.A.S. Child
From a dear, sweet 5 year old (yes, 5).  (thanks, little C and mom)
***************************************************************
“Once upon a time I got a flu shot…and I got really really sick.
Nothing my mommy could do, total eclipse of the heart.
Once upon a time, there was light in my life…
And then I went away to the dark.
Nothing she could do, total eclipse of the heart.
(Turn around) every now and then I get a little bit sad when I listen to the sound of her tears
(Turn around) every now and then I get a little bit nervous when I have to go to IVIG.
(Turn around) every now and then I get a little bit mad when I don’t win the game.
(Turn around, bright eyes) Every now and then I fall apart
(Turn around, bright eyes) Every now and then I fall apart
(Turn around) every now and then I get a little bit happy when I play with my friends
(Turn around) every now and then I get a little bit angry when Cal takes my stufF.
(Turn around) every now and then I get a little bit scared when I hear the Halloween lights (scary sounds)
(Turn around) every now and then I get a little bit embarrassed when I pee the bed
(Turn around, bright eyes) Every now and then I fall apart
(Turn around, bright eyes) Every now and then I fall apart
And I need you now tonight and I need you more than ever… Mommy.
And if you only snuggle me tight
We’ll be holding on forever
And we’ll only be making it right ’cause we’ll never be wrong
Together we can fight the bad guys and kill the disease
And there will no more IVIG’s
I don’t know what to do…na na na na na na na na na na na na……dark….
I really need you tonight, forever’s gonna start tonight
Forever’s gonna start tonight
Once upon a time I was really sick, but now I’m getting so much better
There’s nothing I can’t do… a total eclipse of the heart
Once upon a time I was in the dark, but now there’s so much light in my heart
Nothing I can say… I love my mommy soooo much.”

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