High dose IVIG # 9

High dose IVIG # 9 for Faith’s PANDAS and Immune Deficiency will be this Mon-Weds (April 16-19).  Due to the reactions (severe headaches lasting days & sometimes unresponsive to meds, fever and vomiting) Faith had following the last two infusions, we’re changing to a different medication and running it over three days, instead of the usual two days.

We’re also getting back some of the labs we recently ran (and running more this coming week) and finding some answers there as well.  Although one never wants to have positive results to these labs, it’s good that we are tracking down the problems, so that they can be addressed and hopefully, help in her healing.  The most notable one is we’ve learned that she has diminished ability to clear certain toxins from her body due to alterations in her methylation cycle.  We’re hopeful that we are closing in on this one and anticipate it will be easily corrected…. nice that something is likely to be simple, so we’re thankful for that.

Prayers are appreciated that this one will go better and help her heal… speaking of which, please also pray for good sleep as she’s not been resting very well lately and sleep is crucial to brain healing.

Thanks so much; your prayers and support sustain us as God guides our every step.

Lab results on Good Friday

It’s Friday, but Sunday’s coming.

How often during these last few years it has felt like Friday.  How often we have not had answers about why things are happening the way they are, about what all this means, about where it’s all leading.

Today, we received some preliminary labs, while we continue to wait for others.  We’re starting some research on what we know so far, hoping we’ll soon learn more and considering what other labs might be important for the next time.  We’re hopeful this will bring information to help Faith heal.

Again, we don’t have answers about why, what, where… again, it’s Friday… but, Sunday’s coming.

We rejoice that even though we do not know the answers to many questions right now,  we can be confident and thankful, even joyous in the incredibly good news of Jesus, who paid our debt and rose on Sunday.

 

 

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