Sick girl tonight … prayers please

Sick girl… again… still… I’m getting confused.
Apparently, had a reaction to the IVIG (# seven – high dose) 2 weeks ago that seems to have negated the + effects of the infusion.  Ironically, this infusion ran the best of all 6 before it… and it is the first time she has had a reaction like this afterward.  We usually see such great benefits and healing from the IVIG’s.  After day 2 of the infusion, she had a severe headache, vomiting and fever.  We’re working with her doctors to prevent that with the one she will have in 2 weeks and we see her PANDAS Neurologist on Friday… praying hard that this next one helps her as she’s been struggling with her health a great deal recently.
She did get a little bit of schoolwork done today in History, so I’m thankful for that as it can be very challenging to process academics when one’s immune system is attacking their brain.
Tonight, she vomited several times again.  It’s been a challenging day.  She’s so exhausted and really misses her life.  It’s rare she is able to leave the house, see friends or do anything “fun”… it’s a tough situation for a 12 year old who’s been at this for over three years now.  Hard for a mom to watch, too.
Lord, I trust you carry us through everything and I *know* you have a plan in all of this… please heal my child as you direct our steps. ♥
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2 Comments (+add yours?)

  1. PJ
    Mar 05, 2012 @ 23:36:43

    I am praying for your daughter and you. My child has been recovering from Sydenham’s Chorea for the last year. She takes Cephalexin bid daily and needs Bactroban for her skin rashes but they are going away now. Sammy took daily antibiotics – I am sure you have read the book Saving Sammy. His Mom has a website….maybe you could get some thoughts from her.

    Reply

    • PANDAS - PITAND ~ Mom to My Hero
      Mar 23, 2012 @ 20:08:22

      Thanks so much for the prayers, PJ – they sustain us!

      Yes, I know Beth Maloney and have had her book for years; however, Sammy’s case is very different from my Faith, who has an immune deficiency, as well as other co-existing diagnoses. We’re working with some of the top specialists in the country.

      Thanks again for visiting our blog and I hope your daughter continues to improve!

      Reply

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