No improvement … more aggressive treatment

If you’ve been to my About PANDAS/PITAND & Links page, you’re aware that Major Depression is a symptom in approximately 36 % of cases.  In Faith’s case, this has reached an urgent level as she is having disturbing thoughts.  We discussed it at length yesterday with her counselor and are ensuring her safety.  Her medical doctors are aware.

We met with her Pediatrician this morning, who ran yet another strep test… which was yet again – positive – even on a strong dose of oral antibiotics twice daily.  😦 This means that the antibodies are still active due to the recurrent strep throat infections and that the antibodies continue to attack the basal ganglia in her brain…. for over a year now.

He ordered antibiotics via Intravenous infusion for 14 days.

After FOUR needles sticks (not her nurses fault or hers… nurse is skilled and Faith has good veins – we think the catheters are defective), we achieved an access!  Four nurses in the room working on it… counting Momma RN, me.  The staff nurses were great and Faith was soooo patient and calm – I was so proud of her!!!  The infusion ran fine.

We are due at children’s hospital first thing in the morning for PICC line placement.  Her nurse established daily infusions of the antibiotic for her.  Our doctors are consulting about her next high dose IVIG infusion.

The troubling thoughts continue at this point… we hope that in eradicating the strep infections and arresting the auto-immune process, we’ll be able to finally stop the relentless attacks by the antibodies in the basal ganglia region of her brain.

We *KNOW* that we are in God’s loving hands.  We *KNOW* that He *WILL* heal her in His time and we rely on Him.  In appreciation of your prayers, love and support…

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2 Comments (+add yours?)

  1. Samantha Gluck
    Apr 14, 2011 @ 19:04:15

    I’m so sorry things are so difficult and agonizing right now. My entire family is praying for you every night during our family devotionals. Know that we stand with you in this fight. Love, Sam

    Reply

  2. Harold E.Grubbs
    Apr 14, 2011 @ 21:40:31

    Denise,

    Please go to your personal e-mail

    Harold

    Reply

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