Hopeful Parents

Someone shared this link with a group of PANDAS parents.  It resonated for most of us.  While it was written about ASD (Autism Spectrum Disorder), one can easily substitute PANDAS for every instance of ASD.

If you are the parents of a child with PANDAS or any other special needs condition, and are experiencing several symptoms on the list mentioned, know this.

  • You are NOT a bad parent.
  • This is NOT your fault; your child has a medical autoimmune condition.
  • You are NOT alone.
  • You are NOT weak.  (As the post mentions, you are a reasonable person, who has been dealing with an unreasonable situation, for an unreasonable amount of time, without reasonable support.)
  • There IS hope!  Contact your physician and/or counselor.  Make an appointment.  Bring the list of PTSD symptoms with you, marking the ones that are applicable to you.
    • I know all too well that you are reluctant to do so, given the history of being ignored, judged, dismissed, etc. with your child’s condition.
    • Go and discuss it anyway.  You need to be as healthy as possible to get through this journey.

Hopeful Parents – ASD & PTSD

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