Rough night… severe episode as Swedo’s live discussion ended

Severe episode tonight, following an episodic day of waxing/waning symptoms. Worst of episode lasted about 45 min, followed by thrashing for a couple min, then limp…then hallucinations… I could not get near to comfort her.
We’re all exhausted.
Good news is this is the first bad one since almost a week ago, Thursday.
Our local immunologist is reviewing research literature supporting high dose IVIG for PANDAS.  NIMH is doing another study on it.


1 Comment (+add yours?)

  1. Karen South
    Feb 10, 2011 @ 09:59:13

    So very sorry to hear of Faith’s episode. It is encouraging though, to hear it has been almost a week episode free. Continued prayers and love for Faith, you and your family.


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