Rough night… severe episode as Swedo’s live discussion ended

Severe episode tonight, following an episodic day of waxing/waning symptoms. Worst of episode lasted about 45 min, followed by thrashing for a couple min, then limp…then hallucinations… I could not get near to comfort her.
We’re all exhausted.
Good news is this is the first bad one since almost a week ago, Thursday.
Our local immunologist is reviewing research literature supporting high dose IVIG for PANDAS.  NIMH is doing another study on it.

Advertisements

1 Comment (+add yours?)

  1. Karen South
    Feb 10, 2011 @ 09:59:13

    So very sorry to hear of Faith’s episode. It is encouraging though, to hear it has been almost a week episode free. Continued prayers and love for Faith, you and your family.

    Reply

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Enter your email address to subscribe to this blog and receive notifications (instant, daily, weekly or never) of new posts by email.

Join 70 other followers

Blog Stats

  • 32,274 hits
%d bloggers like this: